Little Liz Ready to Show Up |
I lost the ability to use my left arm 5 days before mom’s
last Christmas. I was sitting at my desk
at work, desperately trying to get through the stacks of files before we were
due to head to California for what we all knew would be her final holiday. She was dying. And the weight of that knowledge hung on me like
one of those lead x-ray jackets they drape over you at the dentist’s office. One moment my left hand worked, the next it suddenly
lacked the dexterity necessary to flip through my mountains of police
reports. I ignored it. I had too much work to be done in order for
me to head to my home town the following day.
I couldn’t be side-tracked by the nuisance of a lazy hand. I felt foggy.
As if a cloud had descended on my brain and smeared my
concentration. I pretended it wasn’t
happening. I chalked it up to the stress
of a recently completed Grand Jury, the pressure of an impending 14 hour drive with
three young children, and the need to have all my Christmas preparation
finished before we left. I was just
tired I told myself. I just needed to
power through these last files and get home to finish that daunting pile of
laundry and the massive packing. I would
be fine.
Except I
wasn’t. By that evening I couldn’t walk
without dragging my left leg behind me Quasimodo-style. I was dizzy.
And I eventually had to admit something was very wrong. A phone call to the doctor resulted in a trip
to the emergency room where they treated my stroke-like symptoms and admitted
me to the neuro-ward for a terrifying stay.
And that was only the beginning.
The good
news is that it was not a stroke. I was
37 for the love of Pete and in otherwise great health. The bad news is that what it was instead was the
life-long debilitating auto-immune disease of Multiple Sclerosis. The worst
news was that I was about to ruin Christmas. As if having a mother being ravaged by cancer wasn’t bad enough.
news was that I was about to ruin Christmas. As if having a mother being ravaged by cancer wasn’t bad enough.
I
remember my mom calling me while I lay in my hospital bed. I held the phone with what would now be
referred to as my “good arm”. We didn’t
say much. We just cried. We cried because vocalizing our actual fear was
impossible. She was dying and I was a
shell of the self I had been just 24 hours earlier. We couldn’t speak of what might be because
the reality of the unknown was just too devastating. But I remember her asking me to come home
anyway. Telling me.
And there is MOM’S
LIFE LESSON #13.
JUST SHOW UP.
Most times, that’s the best thing
we can do as parents. As friends. As people.
Mom was the most reliable attendee at any and every event. All seven of us could expect her at our
boring dance recitals, our soccer games, our church events, our choir
concerts. Her entire weekends were spent
supporting us. Her weeknights were
typically devoted to schlepping us around to wherever we needed to be. We made a lot of plans for people who had no
way to get ourselves anywhere. And so she
never had a free minute.
She gladly drove as many kids as
could pile into our giant van to Santa Cruz once a week all summer long. She “decided” she enjoyed camping at the
beach despite the sand in her mayonnaise by day two because that’s where her
children found joy. {I opted out of those trips as soon as I was
allowed to stay home by myself. Camping
has never been my “happy place”.} If she
was invited to a wedding, an anniversary party, a bar-b-que, a Quinceanera, a
briss (ok, I made that last one up) she went.
And she’d bring some brownies, help you set up, and then clean the joint
long after all the other guests had called it a night. She was there. She didn’t miss a moment. She was the ultimate shower-upper. She did this because she understood the value
of just being present. She didn’t need
to be the best dressed, decorate the most elaborate cake, or arrive in the coolest
SUV. She was enough. And she knew it. I watched her do that my entire life. I had learned.
So we went. To California. I shoved my drooping arm into a sling,
dragged my spaghetti leg behind me and we drove. And that drive was miserable. My broken body was mostly unwilling to cooperate
in any way that could’ve made it comfortable.
I was sad, utterly terrified, and exhausted. But we made it. I showed up.
Less than myself. But present.
And my weak body continued to show up
that holiday at every event mom had planned for our huge crew. We rode a Christmas train, went to see the
Oakland Temple lights, watched the grandkids cooperate in a rather irreverent way
to perform a nativity play, and had more family meals than I can count. I wasn’t the life of the party. I wasn’t the best dressed (sweats were all I
could manage to pull over my failing frame).
I was barely ambulatory. But I showed up.
Mom was a force. But even she couldn’t ignore the cancer that
was winning a battle within. By
Christmas day we sat next to each other on the couch, content to watch the
chaos of 20 grandkids circling around us and in complete recognition of our
pathetic pairing. Her with her deadly
disease. Me with my self-attacking
brain. But for that Christmas, that was going
to have to be enough. We showed up.
By the following day, I could no
longer walk at all.
The next couple of months were dominated by me learning to use a wheelchair, struggling through occupational therapy (which is what they tell you to do when they assume you aren’t going to get better) and beginning a regimen of daily injections to “lessen” the effects of my MS. It was the hardest thing I’ve ever done. And the fear didn’t subside until my symptoms started to. But just as my body’s betrayal began to lessen, my mother’s began to get worse. As I got stronger, she got weaker. I was forced to take a significant amount of time off work and though I was not at my best, I was thus able to trade weeks with my sister back home in Livermore to be with mom. I was upright and walking again. And so I would be present as she was losing the last battle of her life.
It’s because of my MS that I was
present the moment she died. Together with
my brother Jared, I held her hand as she slipped from this life into the next. It’s because of my MS that I was not at my
desk reading police reports or in court prosecuting some bad guy, but instead I
was by her side. It’s because of my MS
that I showed up one
final time for her.
And I wouldn’t trade that for
anything.
Me, today, showing up at the grocery store with two of my crazies. |